As a Board Member and Advocacy Chair for the Metastatic Breast Cancer Network, I want the new year– 2012– to be an important milestone for the metastatic breast cancer community. We deserve to have better outcomes in the clinic, as those with early stage breast cancer have experienced. I am not talking about a cure. Rather, I am talking about each of us having access to targeted, personalized treatments for our particular type of metastatic breast cancer so that we can live many years with a good quality of life. Put another away, if we cannot be cured, then we deserve research that develops treatments which transform the disease into a truly chronic disease, like diabetes or HIV-AIDs.
HOW DO WE MEET THIS CHALLENGE?
One way is to articulate clear requests to those who can improve or transform our lives.
WHAT WOULD YOU SAY…
…if someone were to ask you “What are the needs of metastatic patients so that there would be a change in the outcome of metastatic breast cancer?” Could you share 3 or 5 unmet needs that would make a big difference, if they were met?
I INVITE YOU TO SHARE…
…what you would ask some or all of the following groups to do differently to change and improve the lives and futures of metastatic breast cancer patients. Please post your response below or email to firstname.lastname@example.org. We will compile all responses and summarize. Thank you!
WHAT WOULD YOU ASK OF…
Your local cancer center
Your family members and/or friends
Your local congressperson or senator
Researchers and scientists
US Food & Drug Administration (FDA)
Breast Cancer Organizations
Early stage breast cancer survivors