Metastatic Breast Cancer Network applauds and supports the efforts of National Breast Cancer Coalition (NBCC) to establish a 2020 Deadline to End Breast Cancer. In your recent op-ed piece in the Boston Globe, you laid out a cogent argument for why we need to approach breast cancer with a deadline and a co-ordinated, bold plan, reminiscent of President Kennedy’s challenge to put a man on the moon in a decade. We know all too well the successes and failures of breast cancer treatment, research and advocacy. We live from scan to scan and enthusiastically accept incremental advances in treatment because that is our only choice. We agree that we need a plan that attacks the problems of “organizational and systemic dysfunction that discourages bold new ideas in favor of safe research and predictable results.”
As a voice for the metastatic breast cancer community, we particularly liked your clear statement of goals for the 2020 Deadline campaign:
- preventing people from getting breast cancer in the first place and
- preventing those who get it from dying of it.
Previously this goal had been stated as “preventing metastases,” which left many of us wondering if we were included or not. We already have mets, so it didn’t seem that prevention was going to work for us. Some argued that preventing metastases meant preventing their further spread, but it was still an unclear and contentious issue.
We thank you for clarifying this with a simple phrase: preventing those who get it from dying of it. No doubt there that we are included.
As an organization, Metastatic Breast Cancer Network urges all of our members to sign the petition and visit your website to find out how to support the campaign in other ways.
Thank you. We look forward to working together with NBCC.
Michele Przypyszny – President
Metastatic Breast Cancer Network (MBCN)
Reblogged this on ihatebreastcancer and commented:
I have to echo MBCN’s sentiments–I am glad the National Breast Cancer Coalition (NBCC) clarified its metastatic stance for the 2020 Deadline to End Breast Cancer. Thank you, Fran Visco and NBCC team.
The late Ellen Moskowitz, MBCN’s long-time president, specifically addressed this issue when she resigned last year:
“We need to keep this awareness growing,” Moskowitz wrote. “We need to speak up and not allow MBC to be put on the back burner. We need to ensure that National Breast Cancer Coalition (NBCC) includes research to STOP metastatic spread—and not just to prevent metastatic spread. So much has changed for us since I was diagnosed. I am so proud to have been a contributing factor to this change. We are bonded and our voice is louder than ever–we are actually being heard!”
NBCC is following along. I blogged about this a few days ago and they sent a tweet acknowledging the blog. I’m thrilled to see the new wording and I am NOT a mets patient. I’m just one of the #FearlessFriends from twitter and a blogger who made a commitment to devote one post a week to metastatic disease.
Hugs all the way around…
Yes, I saw your blog–I think it was one of the first. You really do keep up on things! Thanks for all you do for metastatic disease. For others: Anne Marie blogs at http://chemo-brain.blogspot.com/
I am very happy they clarified that statement. That had distressed me and left their Summit feeling somehow duped.