We want to salute Laurie Kinsgston, a Canadian metastatic breast cancer patient advocate and author, for her work with the Canadian Breast Cancer Network. On May 1, 2014, Laurie and representatives from the Canadian Breast Cancer Network joined Liberal MP Hedy Fry to call attention to her private members’ bill to designate October 13th as National Metastatic Breast Cancer Day.
Laurie, who lives in Ottawa, learned was first diagnosed in breast cancer in 2006, when she was 38 years old, with two little kids. Three months after she completed treatment, she learned the cancer had spread to her liver. Treatment went well–seven months later, her scans revealed no evidence of disease. But in November 2012, she was diagnosed with brain mets.
“After conventional and cyber knife surgeries, I was once again able to embrace the words ‘no evidence of disease,'” she writes. “I will be in treatment for the rest of my life and, as there are no drugs that effectively cross the brain-blood barrier, I live from scan to scan trying not to dwell on the inevitability of the next brain tumour.”
In her statement as part of the CBCN delegation Laurie said she doesn’t identify with the prevailing spirit of October’s Breast Cancer Awareness Month. “Like most women living with metastatic breast cancer, I hate the onslaught of pink that hits us every October. I don’t feel that all the talk of ‘feeling your boobies,’ of battles won and lost has much to do with me. Much more relevant to me are clinical trials, drug coverage, quality of life and the long term effects of treatment. . .”
Please read the full text of Laurie’s remarks here. Laurie is a gifted writer and an eloquent spokesperson–why not take a moment to tell her so?
Read more about the history of National Metastatic Breast Cancer Awareness Day here.
We are cheering our Canadian friends on and hope they succeed!