New Survey on MBC Symptom Control

MBCN urges you to participate in this important survey—the MBC Symptom Control Survey, designed by respected, long-time metastatic breast cancer advocate Musa Mayer.

If you are living with metastatic breast cancer, please take part in this brief survey about how you and your treatment team are dealing with the symptoms and side effects you have from your metastatic breast cancer and its treatments.

Advanced Breast Cancer 2nd International Consensus Conference

The Survey results will be featured in a presentation at ABC2, the Advanced Breast Cancer Second International Consensus Conference, to be held in Lisbon, Portugal, November 7-9, 2013, and shared on the  AdvancedBC.org  website immediately after the conference.

The survey should take about 10-15 minutes. Your answers will be anonymous, and no information will be collected that could identify you. Please forward this invitation to anyone you know who is living with MBC.

Complete this survey and let your voice be heard!

Survey link:  https://surveymonkey.com/s/MBCSymptomSurvey

We at MBCN urge you to participate!

Send us your story: the good, the bad and the ugly

A few weeks ago, I met an energetic, adventurous and determined older woman with metastatic breast cancer.  After exchanging pleasantries and our cancer “stats”, I suggested to her that she write her story for our website.  She kindly, but assertively, commented that she wasn’t sure that she wanted to write the kind of “positive” story that she thought we would expect.

She went on to talk about the struggle to deal with difficult and cumbersome side effects and the unrelenting stress of living with uncertainty.  This woman also spoke about the adventures that she was engaging in and the importance of these ventures in keeping her focused on moving forward.

We all know that dealing with mbc is complex, gritty, and at times, very unpleasant.  I invite you to share your story with us – even those parts of your experience that are more painful.  Do not feel that your story must only be positive.  MBCN is committed to raising awareness and this means that we are open to and desiring of stories that reflect all aspects of what it is like to live with mbc.

My best,

Joani

mbcn@mbcn.org