Many thanks to those who responded to “Share With Shirley” in which I asked MBCN website users to identify metastatic breast cancer patients’ needs which, if met, could change outcomes in the clinic. The responses, from email and posts to this blog, were very articulate and thoughtful.
Know that I will share your messages strategically with various breast cancer organizations, researchers and scientists in 2012.
On January 26-27, I will be participating in the “Komen Roundtable for Metastatic Breast Cancer “ in Dallas. Texas. Komen seeks suggestions from invitees to help the organization formulate and institute ways to help those who have metastatic breast cancer. As many of you have said, we want large breast cancer organizations to work together and to share with the public the “whole story” about breast cancer—especially metastatic breast cancer. And, we want the percentage of funds that goes to research that will turn metastatic breast cancer into a truly long term chronic disease increased dramatically.
Stay tuned….more to come!
In the meantime, I urge each of you to be open to sharing your story and the needs of metastatic breast cancer patients with others wherever you are. We CAN change outcomes of metastatic disease if we speak up clearly, strongly and often.
Let me know what you are doing so we can collaborate.